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我国第一批罕见病目录出台

健康 来源:健康报 2018年06月11日 09:59 A-A+ 二维码
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原标题:

近日,国家卫生健康委员会、科技部、工业和信息化部、国家药品监督管理局和国家中医药管理局等5部门联合印发《第一批罕见病目录》。第一批纳入目录的罕见病共121种,包括白化病、肌萎缩侧索硬化、血友病等。各部门还将按照分批制订、动态更新的工作方式,逐步完善我国罕见病目录。

国家卫生健康委员会相关司局负责人表示,目录根据我国人口疾病罹患情况、医疗技术水平、疾病负担和保障水平等,并参考国际经验,由不同领域权威专家按照一定工作程序遴选产生。同时,目录广泛征求了相关部委和行业意见后达成一致。(首席记者姚常房)

BlobNotFoundThe specified blob does not exist. RequestId:bff1aed7-801e-0131-3ff8-1325eb000000 Time:2019-05-26T19:21:01.5597976Z 目录 | 第一批罕见病目录
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我要纠错编辑:邹杨 责任编辑:张福伟
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